It’s been a bit of time since my last input in either of my blogs, journal and quite a bit in my care occurred, leaving many of my family and friends out of the loop.  My team of doctors and nurses who visit with me every morning of the week, had commented up until Day 18/Thursday, 24 Jan that they were extremely surprised and excited that I was doing so well.  So well as compared to most patients at my stage,…

"If there is something to be learned from having cancer, it is that there are far greater things to sweat than the small stuff!" ~ Me

Day 7 (Thursday, 10 Jan)

All is confused by the 'headache' deal that I'm having whether it be from the chemo,…

One is always frightened of the mess when it comes to paperwork, hospitals and insurance providers/Tricare.  In my case, the fear is still there, yet with a case manager at Walter Reed facilitating my care and a case manager here at Johns Hopkins, the confusion that sometimes arises from a military to civilian hospital has been somewhat minimized.  Here is the key though to making sure that if you have to be…

I don't even want to begin to tell you what this military family has been through since September of 2011 and really for the majority of 2012--I'll save that for another blog in this series.

Just a short snippet of my current situation:  What began as some blood work during an emergency room visit in April 2012, to possible liver disease, then hemochromatosis, all stemmed from a rare blood disorder,…